The United Kingdom Health Statistics theme groups

The United Kingdom Health Statistics Steering Group (UKHSSG) theme groups were set up after a recommendation from the Office for Statistics Regulation (OSR).

The theme groups aim to make sure there are relevant, coherent and accessible health and care statistics that meet user needs. The theme groups cover all areas of the health and care statistics system. They are chaired by a lead from one statistical provider and have members from other official statistics producers. As groups are self-established, users are essential in informing the future direction of health and care statistics. Theme groups recognise the importance of UK wide coherence and are looking to include this line of work in prioritisation where possible and are establishing membership across the four nations.

Action plans by theme group

Aim 1

We aim to improve accessibility and coherence of official statistics.

Aim 2

We aim to reduce the need for duplication in data collection and analysis to make sure producers of official statistics are working effectively.

Aim 3

We aim to harmonise methods and definitions used, where possible, and help users understand differences between methods and terminology used in analysis.

Aim 4

We aim to identify evidence gaps and priority areas for improvement and contribute to the development of statistics.

Aim 5

We aim to share learning and updates on projects to improve our understanding of the data landscape and act as a conduit between producers of statistics across the UK.

Aim 6

We aim to improve our understanding of our users and coordinate user engagement.

Contact

For further information on this theme group, contact Bethan Sherwood, Welsh Government on GSS.Health@ons.gov.uk.

Members

Members of this theme group come from the following departments:

  • Department of Health and Social Care (DHSC)
  • Department of Health, Northern Ireland
  • NHS England
  • Office for National Statistics (ONS)
  • Scottish Government
  • Welsh Government

The action plan for this theme group will be added once available.

Aim 1

Harmonise methods. Identify where cancer statistics cover similar topics.

Progress

We created a framework that categorised statistical releases into ‘epidemiology’, ‘pathways’, and ‘outcomes’, and mapped all of our statistical releases onto that framework to identify gaps and areas of overlap.

Aim 2

Harmonise methods. Where statistics cover similar topics, we aim to remove or justify methodological differences.

Progress

For areas of overlap, we have convened Task & Finish groups consisting of producers of those statistics, with the aim of identifying whether it is possible to align methodologies. These are currently underway.

Aim 3

Improve coherence. We will aim to coordinate releases of cancer data across producers and nations.

Progress

For areas of overlap, we have convened Task & Finish groups consisting of producers of those statistics, with the aim of identifying whether alignment is possible. These are currently underway.

Aim 4

Improve coherence. We aim to make our terminology clearer and more consistent across outputs.

Progress

For areas of overlap, we have convened Task & Finish groups consisting of producers of those statistics, with the aim of identifying whether alignment is possible. These are currently underway. Further, we have invited Cancer Research UK representatives into the group to support ways that we can make data more accessible.

Aim 5

Improve accessibility. We will aim to improve the access to cancer data by creating a centralised hub for available data.

Aim 6

Improve accessibility. We will improve signposting of cancer statistics across producers through a publication matrix and where the data can be found. This will be published on the Analysis Function webpages and on statistics producers own web pages.

Aim 7

Understand user needs. We will aim to engage with our users to understand how best to present statistics.

Aim 8

Understand user needs. We will aim to engage with our users to identify any gaps in cancer data available.

Contact

For further information on this theme group, contact Paul Jennings, NHS England on GSS.Health@ons.gov.uk.

Members

Cancer Research UK

Department of Health and Social Care

Department of Health, Northern Ireland

NHS England

Public Health Scotland

Public Health Wales

Welsh Government

Aim 1

We aim to improve the visibility of outputs across theme group organisations. This also involves identifying areas that would benefit from coordination to improve coherence.

Aim 2

We aim to improve our understanding of our users and coordinate user engagement.

Aim 3

We aim to identify evidence gaps and priority areas for development across the topics.

Aim 4

We aim to work together to develop requirements to improve the availability of children’s population data by ethnicity, and possibly other measures, for use as denominators and the production of rates by ethnicity.

Aim 5

We aim to review the use of geographical breakdowns in outputs, particularly Office for National Statistics (ONS) outputs that cover England and Wales combined.

Aim 6

We aim to monitor post-pandemic recovery in our statistics. Some new opportunities to share data were developed in response to the pandemic. We will identify which of these which opportunities were most useful and continue to support them.

Contact

For further information on this theme group, contact Greg Ceely, Office for National Statistics (ONS) on GSS.Health@ons.gov.uk.

Members

Department of Health and Social Care

NHS England

Office for National Statistics

UK Health Security Agency

Welsh Government

Aim 1

We aim to provide meaningful comparisons of secondary care waiting time and performance statistics across the UK. The comparisons should concentrate on similarities between the data rather than differences.

Progress

Work is ongoing to determine the mechanism for providing comparisons, and a written document will be produced and published to communicate the findings. The first subject for comparisons will be elective wait times.

Aim 2

We aim to look at outcome metrics to account for devolved policies and differences in data definitions.

Progress

Work is ongoing to identify outcome metrics, which will run alongside work outlined in aim one.

Aim 3

Contribute to the development of statistics and act as a conduit between producers of statistics across the UK. This will help ensure coherence across the UK in the longer term.

Aim 1

We aim to improve accessibility and coherence of official statistics.

Aim 2

We aim to reduce the need for duplication in data collection and analysis to make sure producers of official statistics are working effectively.

Aim 3

We aim to harmonise methods and definitions used, where possible, and help users understand differences between methods and terminology used in analysis.

Aim 4

We aim to identify evidence gaps and priority areas for improvement and contribute to the development of statistics.

Aim 5

We aim to share learning and updates on projects to improve our understanding of the data landscape and act as a conduit between producers of statistics across the UK.

Aim 6

We aim to improve our understanding of our users and coordinate user engagement.

Contact

For further information on this theme group, contact Andy Pring, Department for Health and Social Care on GSS.Health@ons.gov.uk.

Members

Care Quality Commission

Department of Health and Social Care

NHS England

Office for National Statistics

Public Health Scotland

Public Health Wales

Aim 1

We will keep group members informed of ongoing and upcoming work, including publications, on the topic of health inequalities.

Aim 2

Use the group as a forum of expertise to share and discuss methodologies and data.

Aim 3

We aim to improve accessibility and coherence of health inequalities related statistics.

Aim 4

We aim to improve user engagement with statistics, data and publications.

Aim 5

We aim to keep a UK-wide scope with representatives of the four nations in the group.

Contact

For further information on this theme group, contact Alistair Rose, Department of Health and Social Care on GSS.Health@ons.gov.uk.

Members

Department of Health and Social Care (DHSC)

Department of Health, Northern Ireland

NHS England

Office for National Statistics (ONS)

Scottish Government

Welsh Government

Aim 1

We aim to work together to:

  • improve the visibility of outputs
  • co-ordinate publications
  • improve the coherence of Official Statistics across producers and within the four nations

Aim 2

We aim to work together to:

  • harmonise methods and definitions used in mental health analysis, where possible
  • help users understand differences between methods and terminology used in mental health analysis

Aim 3

We aim to:

  • improve our understanding of our users
  • coordinate user engagement

This will enable us to identify evidence gaps and priority areas for development and improvement.

Aim 4

We aim to:

  • improve the coverage and quality of mental health data
  • reduce the need for duplication of data collections

Aim 5

We aim to share knowledge and insights to help monitor post-pandemic recovery of mental health.

Aim 6

We aim to improve the support and training available to users of mental health data.

Contact

For further information on this theme group, contact Cher Cartwright, NHS England on GSS.Health@ons.gov.uk.

Members

Members of this theme group come from the following departments:

  • Cambridgeshire and Peterborough NHS Trust
  • Care Quality Commission
  • Department of Health and Social Care
  • NHS England
  • Office for Health Improvement and Disparities
  • Office for National Statistics
  • University College London

Aim 1

We will keep group members informed of upcoming mortality publications, as well as informing each other of changes and developments of any new and existing methods and definitions.

Progress

We hold a monthly meeting of the group which is an opportunity for members to share information on published mortality releases as well as upcoming mortality publications.

Aim 2

We aim to ensure group members are kept informed of changes to death certification as a result of the introduction of medical examiners and the likely impact on statistics.

Progress

There is a change in the death certification process that will come into force on 9 September. This will change the way deaths are scrutinised and certified in England and Wales with the introduction of a statutory medical examiner system. The lead on this work at ONS (Gemma Quayle) has been providing regular updates to the group. There will also be a presentation from ONS at the August meeting to run through plans for assessing the impact of this change with members given the opportunity to raise any questions or concerns.

Aim 3

We aim to coordinate publications, analysis and advice. Reduce duplication and deliver efficiencies.

Progress

We have discussed the results of the recent health and social care consultation. The group have produced a mortality action plan which provides details on what actions will be taken following the consultation feedback. The action plan includes several proposals to merge publications and deliver efficiency savings.

Aim 4

Coordinate user engagement and deliver a seamless service to users.

Progress

User engagement was coordinated by the group through the recent consultation on health and social care outputs which has provided a range of feedback from users on mortality outputs. This feedback has been analysed by the group and incorporated into an action plan.

Contact

For further information on this theme group, contact David Mais, Office for National Statistics on GSS.Health@ons.gov.uk.

Members

Department of Health and Social Care (DHSC)

Department of Health, Northern Ireland

National Records Scotland

Northern Ireland Statistics and Research Agency

Office for National Statistics (ONS)
Public Health Wales

Scottish Government

UK Health Security Agency

Welsh Government

Aim 1

We will develop an understanding of the coherence of experience data in the UK and identify areas where it is feasible and desirable to improve coherence.

Aim 2

We aim to identify topics where it would be beneficial to coordinate releases of experience data across producers and nations.

Aim 3

We aim to identify topics where it would be feasible and beneficial to harmonise methods. We aim to remove methodological differences, or to explain and justify them.

Aim 4

We aim to identify data gaps in experience data and explore possibilities for filling these gaps.

Aim 5

We will facilitate and promote collaborative working.

Contact

For further information on this theme group, contact Euan Smith, Scottish Government on GSS.Health@ons.gov.uk.

Members

Members of this theme group come from the following departments:

  • Care Quality Commission (CQC)
  • Department of Health, Northern Ireland
  • NHS England
  • Office for National Statistics (ONS)
  • Scottish Government
  • Welsh Government

The action plan for this theme group will be added once available.

Aim 1

Ensure the group has representation from England, Wales, Scotland and Northern Ireland by the end of 2022.

Progress

This aim has been achieved.

Aim 2

Group members will meet at least 2 or 3 times each year to share updates on recent projects to improve statistics on obesity, physical activity and nutrition. This will help to promote harmonisation and avoid duplication.

Progress

This aim is currently being achieved. This objective is ongoing.

Aim 3

Identify evidence gaps and priorities.

Progress

This aim is currently being achieved by having of policy analysts in the group. This objective is ongoing.

Aim 4

Investigate the possibility of publishing UK estimates of obesity prevalence by the end of 2024.

Progress

This aim is ongoing. This work is not currently possible because of the effects of the COVID-19 pandemic on health surveys and national child measurement programmes, which has reduced comparability across the four nations. This will be reconsidered as these data collections evolve following the pandemic. Meanwhile, the group has produced a matrix exploring similarities and differences in current data collections and methodologies. If you would like a copy of the matrix, please email GSS.Health@ons.gov.uk.

Aim 5

Oversee and implement the response to the Health and Social Care Statistics consultation.

Progress

This aim is ongoing. A draft action plan has been submitted to the central team running the consultation.  We will then move on to implementing the action plan once the response to the consultation is published.

Contact

For further information on this theme group, contact Paul Niblett, Office for Health Improvement and Disparities (OHID) on GSS.Health@ons.gov.uk.

Members

Department for Environment, Food & Rural Affairs

Department of Health, Northern Ireland

NHS England

Office for Health Improvement and Disparities (OHID)

Office for National Statistics (ONS)

Public Health Scotland

Scottish Government

Sport England

Welsh Government

Aim 1

We aim to improve access to Primary Care and Dental Data by creating a centralised “hub” of available data.

Aim 2

We aim to reduce duplication and align terminology by reviewing existing publications that cover similar topics.

Aim 3

We aim to identify any gaps in the Primary Care and Dental Data through user research.

Aim 4

We aim to co-ordinate data releases of relevant publications – for example, ensuring publications about GP Appointments and Workforce are released on the same day.

Aim 5

We aim to identify opportunities for any cross team working.

Aim 6

We aim to identify ways which we can develop publications to support the new NHS commissioning structure.

Last Updated: September 2024